Patients' experiences with POEMS syndrome

Mike Gaffney has collated patient experiences with stem cell transplants; to read them, click here

To add your experiences, send your answers to the questions to Mike, at


'Finding answers at Mayo Clinic: a reporter's tale'. (May Clinic, 2008)

Thomas Suchyta, 'Life with a rare disease' (, 2015)


Thomas Suchyta

Martyn's thoughts

No Zero Days


A POEMS story (dedicated to the memory of Mike Oliver)

in memory of Carol Ide

Alan Suher (on this webpage)

(Many more reports of patients' experiences are available  on SmartPatients)

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